The Keith B. Hayes Foundation

The Keith B. Hayes Foundation has been supporting research first headed by Dr. Dalvatore DiMauro and now spearheaded by Hasan Orhan Akman, PhD, Associate Professor of Neurology at Columbia University Medical Center for 13 years.  From a past muscle biopsy, it was determined that Keith had a rare polyglygogen storage disease.  Dr. Akman's research is now beginning clinical trials regarding gene therapy for the RBCK1 deficiency which Keith was later diagnosed with.

To learn more about Dr. Hasan Orhan Akman's Research - "Developing Gene Therapy for RBCK1 Deficiency" - and his grant request, scan the QR code above.

Partnering with the Wheelchair Foundation, Danville, CA, in 2021, The Keith B. Hayes Foundation was able to have a container of over 250 wheelchairs delivered to Yad Sarah to be distributed to their centers throughout Israel.  .Keith was wheelchair bound for the last 1 1/2 years of his life.

BRIDGES , a disability and service organization in Rockland County, NY, was where Keith had been trained to be a mentor.  Before COVID 19, BRIDGES gave out annually "The Keith B. Hayes Spirit of Mentoring Award".  The Keith B. Hayes Foundation continues to support BRIDGES and their clients with disabilities to gain their independence.

The Children's Cardiomyopathy Foundation was founded by Lisa Yue who lost 2 young sons due to cardiomyopathy.  Keith at 20 1/2 years of age passed away due to this same affliction.  The Keith B. Hayes Foundation supports this non-profit's hope in saving children's lives.

JAWONIO, a disability and service organization in Rockland County, NY is our newest Grantee.  The Keith B. Hayes Foundation donated a video game system that is helping adult clients with social and communicative skills.  Keith often played video games to relieve his frustration to his dealing with his physical deterioration.